Readers of The Running Griffin are invited to take part in a special discount code for the 2020 Virtual Jingle Bell dash4debra to support debra of America.
This virtual run will take place anytime between November 27th and December 31st and money raised from this event will go to support research, provide medical supplies to families and patient access to specialists for individuals who have been diagnosed with Epidermolysis Bullosa.EB, is a rare connective tissue disorder with many genetic and symptomatic variations. All types of EB share the major symptom of extremely fragile skin that blisters and tears from the slightest friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30.
There is currently no cure or treatment for EB. Pain management, wound care, and preventative bandaging are the only options available.
To register for this race, please click below and use the discount code IRISH to save $10 off your registration fee. All registrations come complete with a holiday hat perfect to snap a photo in to show your support post-run.