Our Promise to Nicholas Foundation is hosting a 5 K Run in Wayland, Massachusetts on Sunday, October 2nd that will raise money for a childhood brain disease called Batten Disease.
Nicholas lost his battle with Battens Disease on his 11th Birthday, May 9, 2014. He was diagnosed 7 years ago with a life threatening brain disease known as Neuronal Ceroid Lipofuscinosis, or Batten disease. Children with this disease suffer from seizures, blindness, dementia, immobility, and will typically die between the ages of eight and twelve. Batten disease is potentially curable if given enough support for research.
The Fourth Annual John Tanner 5K is held in remembrance of Nicholas’ marathon runner who passed away in the NYC half marathon in 2013. John Tanner was an exceptional athlete and competitive runner who unexpectedly passed away while running the NYC half marathon in spring 2013. He devoted all of his races to raising awareness about Nicholas and Batten disease.
The 5k run/walk course starts and finishes behind the Wayland Town Buildings at 41 Cochituate Road in Wayland, MA. There will be guides at each turn and turnaround cone. Each runner will receive a tee-shirt and there is a huge raffle post-race.
To register for the Fourth Annual John Tanner 5K, please click here.
For more information about Our Promise to Nicholas, please visit their web site at www.OurPromiseToNicholas.com.